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1Sickle-Cell Disease Has Hit Nepal’s Tharu Indigenous Community Particularly HardMahery Vaika Ny Famelezan'ny Drepanôsitôzy ny Vondrom-Piarahamonina Teratany Tharu ao Nepal
2Tharu lady with her cows in a Tharu village outside of Dhangadhi.Vehivavy Tharu iray miaraka amin'ny ombivaviny ao amin'ny tanànakely Tharu iray ivelan'i Dhangadhi.
3Image by Flickr user Inhabitat.Saripikan'ny mpisera Flickr Inhabitat.
4Used under a CC license BY-NC-ND 2.0Nampiasaina noho ny alalana BY-NC-ND 2.0
5As the world celebrates World Sickle Cell Day on June 19, awareness of the disease remains low among a large portion of the Tharu indigenous people in Nepal, though many have lost their lives to it.Raha nankalaza ny Andro Manerantanin'ny Sela Miendrika Antsimbilona izao tontolo izao tamin'ny 19 jona, dia mbola ambany ny fampahafantarana ny aretina ho an'ny ankamaroan'ireo mponina teratany Tharu ao Nepal, na dia maro aza ireo matiny vokatr'io aretina io ao.
6Pramod Neupane, a civil engineer, tweeted:Nisioka i Pramod Neupane, injeniera sivily iray:
7Sickle Cell disease in Tharu Communities is an inherited genetic disorder.
8Needs urgent attention http://t.co/ve6Y5GY9zD #Nepal #SickleCell - Pramod Neupane (@friendycalls) June 23, 2014fikorontanana zenetika lovaina ao amin'ny vondro-piarahamonina Tharu ny aretina Sela miendrika antsimbilona [drepanôsitôzy]
9Tharus, the fourth largest group in terms of population in Nepal, have a seven-fold lower prevalence of malaria than non-Tharus.Tharus, ny vondron'olona fahaefatra betsaka indrindra amin'ny isan'ny mponina ao Nepal, dia manana taha impito latsaka heny amin'ny aretina tazo noho ny tsy-Tharus.
10Tharus have been living in the plains, which were infested with malaria for thousands of years.Niaina teny amin'ny lemaka ny Tharus, izay toerana feno tazo an'arivony taona.
11Sickle cell has been found to be more prevalent in the malaria-affected areas, and the people with sickle-cell trait have been found to be more resistant to malaria.Hita ho betsaka kokoa amin'ny toerana anjakan'ny tazomoka ny sela miandrika antsimbilona, ary ireo olona mitondra ny sela miendrika antsimbilona dia hita ho mahatohitra kokoa ny aretina tazo.
12Twitter profile Genetics and Beyond tweeted:Nisioka ny manana kaonty Twitter Genetics and Beyond:
13Why sicke cell anemia protects against malaria? http://t.co/K5ldQryYyU | #science #fact #GAB #erythrocytes pic.twitter.com/O1LBDLpUDy
14- Genetics And Beyond (@GenesAndBeyond) March 23, 2015Nahoana ny aretin'ny ra sela miendrika antsimbilona no miaro amin'ny tazo?
15With the vast numbers of people diagnosed with sickle cell it is a surprise that not a lot of people are aware of it #SpeakOnSickleCellObamaRaha mahita ny hamaroan'ny olona mitondra ny sela miendrika antsimbilona dia mahagaga raha tsy dia mahalala ny momba azy io ny olona
16- SickleGirl (@SickledGirl) June 12, 2015 Sickle-cell disease receives its name from the abnormally shaped red blood cells, like a sickle in appearance, that get stuck in the blood vessels.Ny aretin'ny sela-antsimbilona dia nandray ny anarany avy amin'ny bika hafahafa hita amin'ny sela mena, manana endrika antsimbilona, izay mihandrona ao amin'ny lalandrà.
17The disorder, which is inherited from parents, makes it difficult for the blood vessels to deliver oxygen to the body, causing intense pain and leading to complications like organ damage and stroke at times.Ny fikorontanana, izay lovaina avy amin'ny ray amandreny, no mametraka fahasarotana ho an'ny lalandrà hamoaka ôksizena ho an'ny vatana, ka miteraka fangirifiriana lalina mbamin'ny fahasimban'ny taova sy fahatapahan'ny lalandrà tsindraindray.
18As the diagnosis and treatment of the disease is very expensive and not available at local health facilities in Nepal, many families have sold their land and properties to get treatment in neighboring India.Noho ny fahalafosan'ny fizahana sy ny fikarakarana noho ny aretina sy ny tsy fisian'ny toera-pitsaboana azy ao Nepal, dia maro ny fianakaviana no mivaro-pananana sy tany hitsaboana tena ao India.
19Last year, the government of Nepal announced free treatment for sickle-cell anaemia patients.Tamin'ny herintaona, nanambara ny hitsaboana maimaimpoana ireo mararin'ny sela miendrika antsimbilona [drepanôsitôzy] ny governemantan'i Nepal.
20However, the health facilities don't have the necessary medical equipment and even for the diagnosis, blood samples are sent to India.Kanefa, tsy manana ny fitaovam-pitsaboana ilaina amin'izany ny toera-pitsaboana eny fa na dia ho amin'ny fizahana hamantarana ny aretina aza dia nalefa any India ny santionan-drà.
21Doctors say awareness is crucial to prevent sickle-cell disease. It is not contagious and people are born with the disorder.Milaza ny dokotera fa tena iankinan'ny ain-dehibe tokoa ny fampahafantarana ny aretina ho fisorohana ny aretin'ny sela miendrika antsimbilona.
22Since there is a 25 per cent chance that a child will have the disease if both parents carry the sickle-cell trait, it is advisable not to conduct marriage between people who share the trait.Tsy mifindra izy fa manaranaka. Rehefa fantatra fa 25 isanjato ny herijika ananan'ny zaza iray hahazo ny aretina raha samy mitondra ao aminy ny ray aman-dreniny, dia tsara kokoa raha tsy mifanambady ny olona roa samy mitondra ity fikorontanana ity.
23Doctors have also advised the Tharu community to go for inter-caste marriages in the areas where the disease is prevalent to check the further spread.
24Awareness is all we need, the rest will follow! #SpeakOnSickleCellObama for World #SickleCell Day 6/19 @POTUS @FLOTUS pic.twitter.com/XqMnWerW8NNanolo-kevitra ny vondrom-piarahamonina Tharu ihany koa ny hanambady olona hafa foko raha monina any amin'ny faritra anjakany ijerena ny mety mbola ielezany na tsia.
25- Sickle Cell 101 (@sicklecell101) June 11, 2015Fampahafantarana ihany no tena ilaintsika, manaraka ny ambiny rehetra!